Newbie! Give me advice!

Hi all, Mama to a 10 year old with localized perianal Crohns and in the process of diagnosis/treatment/getting help for this cruel hell. But, asking for advice. If I could take it all away I would but I can’t…however I want to be the best Mama to him. So, if you were diagnosed as a child, what would you tell your parents? Tell me something I can do today to make the weight of this disease a littler lighter. :)