Right Aortic Arch Support
Hello all, I (23F) got diagnosed at 13 with a right aortic arch, heart murmur, vascular ring, and a multitude of other non-heart related issues. I have had 2 heart operations and 4 failed vocal cord procedures (rare complication with the 1st surgery). I was always told my condition is rare, most of the time it goes undiagnosed, and I have always wanted to meet others with the same condition. It has been hard adapting to being a chronically “sick” adult from a “sick” child; being a sick kid makes everyone 20x nicer to you.
I’ve had a hard time accepting that I will never be able to do things others do, and my family refuses to acknowledge that I even have a disability. I guess all I’m looking for is support and others who have my condition. Thank you all for reading and I apologize if this posts isn’t typically allowed. I’ve been having more issues lately, so I’ve been wanting to reach out to people who know what it is like.